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Life With a DiaPort

If I could describe life with a DiaPort in one word it would be ‘Wonderful’.

My ten year old son has had Type 1 Diabetes for over 9 years and is one of only a few people in the world to be ‘allergic to synthetic Insulin’. He has a rare condition called Lipodystrophy – severe tissue wastage at injection sites, caused uncontrollable blood glucose levels.

Because of the Lipodystrophy we were no longer able to continue with insulin injections and had to look for another method of delivery.

We first herd of the DiaPort in 2004 and were told by our Doctors that it was not an option for us as he was still a child and we did not have anywhere that we could site the implant.

In 2008 my son became very ill and his Hba1c shot up to 11.2% and his general wellness was declining and we knew we had run out of time and needed to do something. When we started looking we found we only had two real options.

Option 1 was a Porta Cath, and with this he would have to be in hospital permanently as it is not designed for use with Insulin, and the risk of using insulin IV was high.

Our 2nd option was the DiaPort; this one was designed for use with insulin but was not available for use in kids and was also not available in Australia.

As a mother you want the best for your child and will go to any lengths to let them have a normal life, so our decision was not hard we just need to fine tune the details like – how do we get the DiaPort, and who do we get to do the procedure.

With a few strings pulled we were off to France for the implant operation and hopefully a new beginning for my son and a better outlook on life with his rare condition.

October 3 2008 was the start of something wonderful.

With the DiaPort and insulin working with minutes of the operation, hypos were a new experience.

Since the operation we have had 8 months of ‘normality’ in our house hold with no painful injection and no fluctuations in his Blood Glucose Levels. This also has allowed us to get his Hba1c down to 8.2%. The overall improvement in his health has been remarkable; no-one could have predicted it.

 Life with the DiaPort has changed our lives in more ways than you imagine, the changing of lines and insulin are not painful and the control we now have is brilliant.

We have however had a couple of infections at the DiaPort site and have needed hospitalisation and IV antibiotics to clear it up, but that is a minor issue with the quality of life my son has had in that last eight months.

Life is great, hockey, swimming and just being a kid.

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Copyright 2018 - Helen Frohloff